Muhammad Ashraf Majrooh, Noor Fatima.
Status of Thalassemia and Hemophilia Services in Existing Health Care Delivery System of the Punjab.
Ann King Edward Med Uni Jan ;8(1):39-42.

This study was conducted to evaluate current diagnostic, therapeutic, transfusion Services and their mutual liaison for Thalassaemia and Haemophilia disorders in existing health care system of the Punjab. A sample field survey of health facilities providing care for thalassemia and Haemophilia patients or with its potential capability was conducted, involving 75 units (including paediatric units, diagnostic laboratories, blood banks/transfusion services, Thalassaemia /Haemophilia Centres) of 27 health institutes/facilities scattered in 12 districts of Punjab. The survey revealed that the number and qualification of staff; capacity of buildings; and equipment for routine tests are sufficient with few exceptions to establish Thalassaemia /Haemophilia Services networks all over the Punjab. However there are major deficiencies in staffs knowledge and skills in the management of Thalassaemia /Haemophilia patients; equipment and kits for specific diagnostic tests; blood component and other therapeutic supplies; transport facilities for distribution of delicate blood components to peripheral health facilities and Information system for Thalassaemia / Hemophilia. The most important problem identified is the very weak inter/intra institution co-ordination/referral linkage and absence of standardised protocols for case management and laboratory diagnosis.

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