Syed Yousif Ali Shah, Shahid Ali Mirani, Safia Khatoon, Mohammad Ilyas Shaikh, Muhammad Amin Sahito.
Oral Clefts; Parents and patients Level of Satisfaction with the Outcome of Treatment in Malaysia.
Professional Med J Jan ;25(3):428-33.

Objectives: The present study was carried out in Malaysia to explore satisfaction of non-syndrome cleft lip and plate (CLP) patients and their parents with treatment outcome. Study Design: Descriptive cross sectional study. Setting: This study was carried out in two tertiary care hospitals of Malaysia, namely University of Malaya Medical Centre (UMMC) and Hospital Kota Bharu/ Hospital Raja Perumpuan Zainab II (HKB/ HRPZII) during August 2007 to March 2009. Materials and Methods: Total eighty three CLP patients (age > 10 years) and eighty three parents were included. The Cleft Profile Evaluation Proforma designed by Royal College of surgeons Cleft Lip and Palate Audit Group was used to assess satisfaction with oral cleft related features. It consisted of an eight item list speech, hearing, lip, nose, teeth, bite, breathing and facial profile. Results: The results of present study revealed that majority of the patients (89.8%) and parents (86.7%) were satisfied with the care and attention provided by the oral cleft team overall. Moreover, It was found that (90.3%) of CLP patients and (83%) parents were satisfied with the overall treatment results. After treatment, speech was very satisfactory for (57.8%) and very unsatisfactory for (8.40%) patients. The hearing after treatment, was very satisfactory for (62.7%), and very unsatisfactory for (7.2%) patients. Out of total 83 patients, appearance of nose was very satisfactory for (36.1%) patients and for (15.7%) patients it was very unsatisfactory. The speech of their child after treatment was very satisfactory for (48.2 %) parents, satisfactory for (37.3%) of the parents, unsatisfactory for (7.4%) parents and very unsatisfactory for (6.0%) parents. The hearing of their child after treatment was very satisfactory for (65.1 %) parents, satisfactory for (30.1%) of the parents, unsatisfactory for (2.4%) parents and very unsatisfactory for (2.4%) parents. It may be concluded that most of patients and parents were satisfied with the treatment provided. There was complete agreement between the patients and parents with regard to their satisfaction about facial appearance.

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